We’ve all heard it before on Oprah and Dr. Phil – you have to be your own advocate these days; don’t be shy or you may pay the price.
As I was talking on the phone one evening in 2002 (age 27), I folded my arms across my chest while I held the phone in the crux of my neck. After a few moments it dawned on me that I was touching something really round, hard and solid on the side of my boob. I casually went to the mirror and lifted my shirt. There was something protruding from my B-cup breast and the skin was yellowish/purple. Must be a bruise. I asked my mom to feel it and she looked at me in horror and said “first thing tomorrow morning, you call and get it seen by a doctor.” I thought okay. In the morning I tried calling my gynecologist but they were not going to see me for two more weeks. I began phoning everyone on the Yellow Pages, mainly because my mother had called me five times already to remind me to get a checkup. Everywhere I called I said that I felt a HUGE lump in my breast – I acted like it was urgent and awful to try to improve my chances of getting an appointment quickly – but to no avail, my acting did not work. Two to four weeks was the typical wait time. I thought, no biggie; I took the earliest appointment I got. My mom did not, and thank G-D she didn’t. She somehow spoke to someone at the hospital, who spoke to someone, who got me an appointment to see a doctor within 30 minutes. [Thanks Mom! Thanks Helena!] Anyhow, as we entered the corridors of the Oncology department (I was not sure what Oncology meant) I realised to my horror that we were in the Cancer department. I wasn’t sure what this bump in my breast had anything to do with Cancer and I was very uncomfortable and felt out-of-place while waiting in the corridor with bald people. The doctor took an aspiration of the “thing” and told me it was probably a Fibroadenoma. But this was no ordinary doctor; this was a senior surgical oncologist who had seen and felt tumors forever. At hindsight, he must have know right away that it was Cancer. There was no mistaking it – the “rock” hard immovable lump, discoloration and how you couldn’t aspirate it, with no pain involved, were all hints that it was cancer. “I’m not worried, but since it’s so big, we’ll take it out anyway,” he said. I walked out of the office with an appointment slip for surgery the next day… hence, the doctor knew, but he wouldn’t worry me until he had all the biopsy results and knew which beast he was dealing with and what treatment options to provide me with… Lesson learned: when the matter is urgent (and lumps in the breast are a priority), get a clinical exam as quickly as possible, ANY WAY you can. Call everyone in the Yellow Pages, go to a walk-in clinic, call a friend who knows a friend, go sit in the waiting room of your gynecologist and wait to be seen, call every day to see if there are any cancellations. push your way in to be seen this week! Don’t put it off to next week or next month because you will be prone to forget or even dismiss the matter.
The lump ended up being almost 6 centimetre cancerous tumour, stage 2, with 4 out of 16 nodes positive and the sentinel node grossly metastatic, with almost perforated margins! A two- to four-week wait may have made a difference in my survival outcome. I’m here 8 years thanks to my mother’s persistence!
Over the course of the following years I learned to push to be seen when it was important. I’m not a hypochondriac but thanks to the fact that I was an advocate for my health, i was saved twice. The second time was when I asked to have the best follow-up screening. It wasn’t available at my hospital but I inquired and went elsewhere – had I not inquired would I have been offered it?? So, at the second hospital I joined a study examining which imaging techniques were the best at detection of early breast cancer. Three years, 3 mammograms, 6 ultrasounds, 3 CT-Scans, 3 MRIs, and 6 clinical exams later, I was called back to the office to be told that a new cancer had been detected in the other breast. I would later find out that it had been detected as DCIS (Ductal Carcinoma Insitu) or in other words, pre-cancerous stage Zero. What a relief;Â what a miracle! Thank goodness I had bothered to ask and actively sought follow-up treatment for myself. I now saved my own life!
Here’s my advice:
Do not be shy, do not feel pushy or bossy – do what you have to do. Be polite but be firm.
ASK! Ask to be seen quickly. Ask if there is anything earlier. Ask to be placed on waiting list. Ask if you can call every day to see if there are cancellations (do it regardless). Ask if they know someone else who will see your faster. Show you mean business. If you don’t ask you don’t get.
Use and develop an arsenal. Do a favour for a friend today so one day they can return a favour and maybe help save your life or the life of a loved one.
Network. Use your connections .
Don’t be scared to find out “the awful truth”. Cancers detected early have decent outcomes.
Most importantly, regardless of what the experts say, I would definitely examine my own breasts once a month. You have to get to know them, ladies. You have to know which lumps are typical and which aren’t. For sure, get a doctor to examine them once a year in addition to your own exams.
Find out your family’s health history and what diseases you are prone or susceptible to so you can be monitored properly.
Feel free to add your own stories, tips and advice here.